Prince Frederik of Luxembourg, the youngest son of Prince Robert of Luxembourg and Princess Julie of Nassau, has died after a ...
Rare Disease Day provided a forum for university and state leaders to lay out the future plans and share the work already ...
Ensuring every newborn has access to life-saving screening and treatment is both a moral and economic imperative.' ...
Patient Advocacy Initiative staff speak on Notre Dame’s Rare Disease Day event and impact for the rare disease community.
The prince had PolG disease, a genetic mitochondrial disorder that prevents the body's cells from producing adequate energy.
Rare Disease Day is observed every year on the last day of February, the rarest day of the year In India, a disease is considered rare if it affects fewer than 100 people per 1,00,000 individuals ...
Zevra used the awareness day to roll out the “Learn NPC, Read Between the Signs” disease awareness campaign. The biotech won ...
Rare Disease Day, recognized globally on the last day of February since 2008, is intended to raise awareness to the approximately 7,000 known rare diseases affecting 300 million people worldwide.
Did you know that one out of every ten Americans has a rare disease? That's why Rare Disease Day is so important to so many ...
For Rare Disease Day, this feature explores national genomic medicine programs and recent research into rare diseases.
UB hosted a Rare Disease Day program at the Jacobs School of Medicine and Biomedical Sciences to raise awareness of rare diseases.